Young Onset Dementia

I am writing to request information regarding individuals with young onset dementia (defined as individuals of any age who first experienced symptoms of dementia under the age of 65 and then received a formal diagnosis) within your local authority area.

Please provide the following information, using the most recent available data (preferably as of 14 April 2026 where possible).

Where data specific to young onset dementia as defined above is not held, please provide the closest available proxy (for example, individuals under 65 with a dementia diagnosis and note the proxy that has been used).



1) Does your authority routinely record young onset dementia as a distinct category within its data systems? (Yes/No) 

2) How many specialist young onset dementia services are currently commissioned or available within your local authority area? 

3) Does your authority have a specific commissioning strategy, policy, or guidance for supporting individuals with young onset dementia? (Yes/No)

a) If yes, please provide a copy or summary.

b) If yes, does your authority have specific criteria or guidance for determining appropriate care settings for individuals with young onset dementia, including age-appropriate or specialist provision? (Yes/No) 

4) How many individuals are known to your authority with young onset dementia?

5) How many of these individuals are currently receiving local authority-funded care and support?

6) Please break down the proportions of those in receipt of local-authority funded care and support with young onset dementia by age:



Age band

% of total

a) Under 40

b) 40-44

c) 45-49

d) 50-54

e) 55-59

f) 60-64

g) 65-69

h) 70+

 

 In the most recent full financial year:

4) how many individuals under the age of 65 have you identified who qualify for support?

5) how many individuals with young onset dementia did you start to provide a service for?

6) Do you cost packages for individuals with young onset dementia internally or externally?

7) Of those receiving care, please provide a breakdown by service type (if recorded):

a) Residential care (please specify if service is predominately older person or working age adult)

b) Nursing care (please specify if service is predominately older person or working age adult)

c) Specialist young onset dementia services

d) Supported living

e) Home care / domiciliary care

f) Other (please specify)

8) The average weekly cost of care for individuals with young onset dementia (if available).

9) The number of individuals with young onset dementia placed outside your local authority area, and the total annual spend on these placements (if available).
 

1. Lincolnshire County Council does not hold this information.

2) LCC do not commission any specialist young onset dementia services
3) No, young onset dementia is addressed as part of the Lincolnshire Joint Dementia Strategy 2025-2030 and the Lincolnshire Adult Social Care Strategy 2026-2028.
a) Not applicable
b) Not applicable

4-9. Lincolnshire County Council does not hold this information.